Get Involved

Anyone can become a member of Nebata. We do not charge any fees for membership. While Nebata was established for Thalassaemia patients and their families, we welcome anyone who is affected by, or interested in, thalassaemia and its treatment. If you would like to join Nebata please fill in a very short Membership Form. Alternatively, Get In Touch with us and we will be happy to answer any questions.

New Members Form


Email Address

What is your interest in thalassaemia/Nebata?

Please specify

What information or services are you interested in?
Receive a monthly newsletterAnnual Awareness ConferenceWorkshopsWritten information about thalassaemia and its treatmentInformation about welfare servicesOne-on-One supportInformation about screeningVolunteer/work opportunities

Phone Number

Postal Address

How did you hear about us?

Please specify

As a primarily voluntary organisation, our work depends on the hard work of dedicated people. Depending on funding, we have paid and volunteer positions. Volunteers usually have some costs reimbursed.

We welcome applications for volunteer positions throughout the year. Please send a CV and brief letter outlining your interest in volunteering with Nebata, your preferred area of work from the list below, and any relevant experience you would need to email [email protected].

Specific positions will be posted when they become available but we generally look for the following skills and experience:

  • Events organising and management
  • Event-specific volunteers
  • Writing reports and communication
  • Database development
  • Fundraising
  • General admin

Since we began, Nebata has been driven by thalassaemia patients and their families. We work closely with medical professionals to help bridge gaps and to empower patients. In accordance with our Constitution, our members elect Committee Membersat our Annual General Meeting. All of our committee members are independent and receive no reimbursement for their time. They are parents, patients, and family members and care professionals.
If you would like to find out more about becoming involved in the Committee, please send an email to [email protected] with ‘Committee Expression of Interest’ in the subject line of the email, or call us on +44 161 27 37 200